I Love You To Eternity
I hope to use this blog to document the events in my life raising my beautiful daughter who was diagnosed with Cerebral Palsy and her twin sister who was diagnosed with Digeorge Syndrome. I hope to be able to help others and also receive valuable information from other parents that have been through a similar experience.
Sunday, April 26, 2026
Mini Chapter 1
Tuesday, January 27, 2026
What is intelligence and how do people become "smart"?
I somehow came around my obsession with intelligence when I was in my early twenties. I can think back to the exact moment when I started to feel a profound interest in how smart people come to be smart. I was in my apartment and probably about two years into my marriage and the thought of having kids was somewhere on the horizon. I was too young and I was raised in an environment where being successful meant having a college degree, marrying a "Smith" as my own father had said to me once and leaving home only once I was married and had met all the previous requirements. I was never the kind of person that liked being around young kids. I did not feel like I had the capacity to properly raise a child. A skill that one seems to acquire best while doing the actual job of raising one. But somehow and for some unknown reason, kids gravitated towards me and I babysat quite a bit while I was a teenager for $5 an hour.
The television was on running whatever came on while I vacuumed the carpet floors of my living room. This was back in the day when infomercials came up every other minute. One of these infomercials caught all my attention and I turned the vacuum off to focus my attention on the television. I caught myself dilegently watching what I thought was a very interesting advertisement for a product that claimed to help infants learn to read. It was literally called "Your Baby Can Read". I remember seeing a young blonde happy and smiling baby pointing to his belly button while an adult - maybe his mom- showed him a large white card and on it was the word "BELLY BUTTON" written in very large and bold black letters. I thought to myself "what a concept!" The price for the program was never mentioned and I never cared enough to call to ask for the price. I imagined that it was as expensive as another program which came on often claiming to teach English to Spanish speakers. This one was called "Aprenda Ingles Legend en EspaƱol" or learn English while reading in Spanish. The latter program seemed like a total bust. I really did not care much about either program. My English was appropriate enough to have a job and go to college and I did not have kids. Later, I thought to myself "Hmmm... when I have a child, I will teach him how to read." Somehow the idea about teaching a baby to read did not seem ludicrous to my twenty two year old self.
About five years later, this thought came back to me when I had my first child, a boy. He was sitting on his high chair, maybe about 8 months old and I began think back about the card with the black bold letters that said "BELLY BUTTON." After a quick trip to the dollar store to buy some cardboard, I began to make my own cards. My naiveness and ignorance about the way reading is taught in schools: letter sounds, sight words, blends, phonological awareness, phonemes, all served me well. I began to teach my son using whole words. And I wasn't shy to teach him short or long words. I discovered that the word "MAMA" and "WATER" were the easiest ones to learn. Years later, I would choose nouns to begin with instead in my teaching program with my two girls and other toddlers whose mothers were so impressed with my own children's reading skills and grades that they decided to book my inexpert services to teach their toddlers to read. All those kids also learned to read and later got into gifted programs within their public schools.
I kept the reading sessions to three minutes. I would show my son one word, then another, then another, and then I'd stop until the next day. I did this process about three to four times a week when it was possible given my lifestyle and other responsibilities. I also developed a form of assessment which entailed randomly picking a word from the pile and testing to see if he could read the word. As he began to talk, he could say the words he could read. By the time he was three, his preschool teacher asked him to read a short story to the two year olds in the classroom next door. He read a level one book entirely.
I taught my first, then my second, then my third child how to read while they were still too young to walk or use the toilet....
Not only were my three kids reading full words when they were two years old, they could read with the fluency of a fourth grader by the time they entered kindergarten.
How do I know this? By what measure do I know that they were so adept in their skill?
I am a teacher. Later and well after the kids were born, I went back to school and earned my Bachelors degree in exceptional student education immediately followed by a Masters degree also in education specializing in instructional design. I am now certified in Kindergarten to twelve grade in exceptional student education, general elementary education, education for students whose first language is not English (ELLs), and gifted education.
Already being bilingual form birth- they were raised in a home where Spanish and English were spoken with equal vigor- they read in both English and Spanish. They also learned French and became fluent speakers and readers of the three languages. One of them also took on Mandarin Chinese and studied it for 4 years and to date. In fact, learning to read at a young age, changed their brain in such a way that school came easy for them and they would earn A after A in each every every report card and each and every subject.
Were these kids born smart? They certainly did not come from genius parents. The evidence of their intelligence points to the fact that they were exposed to decoding words at a very early age, more about that later.
I know that you might be thinking... Many parents read to their kids and that does not guarantee that the kids get straight As in school. Or maybe you are thinking that exceptional performance in school could be the result of being a high achiever, but not necessarily being gifted. Here are the facts... All three kids had their IQ tested and all three tested gifted. In fact, the middle child received an Einstein level score in her IQ test. More about her later...
Monday, August 26, 2024
IT has been a minute or two...
A lot of time has passed since I have written on this blog. Maybe I have not had the need to express myself about our unique and fantastic life, or maybe I have not had the time. In all these years, I have worked and graduated with a degree in exceptional student education and a masters in education. Yes, I have been very busy making a future for ourselves and building a career that I can be happy and proud of. And best of all, my career has been a product of my inspiration: my daughter. I wanted to be savvy enough to help her live the best life possible and that has been my driving motor. I found it appropriate to write tonight because my heart is broken into pieces. So much has changed since I wrote here. It seems as thought it was only yesterday that our lives made a turn and we were forced to learn all about what it was like to raise a child who has different needs, which we are still joyfully learning every day. Do you know that feeling when there is a kind of emptiness in your chest that reaches all the way to your stomach? That is what I feel today when I hear my child tell me the story about her best friend having a birthday pool party and how she did not get invited to it because her friend's family "did not know how it would work." Why didn't this mom reach out to me and asked me for advice or at least tell me the reason why the child who my daughter considers her "best friend" did not invite her? What is worse or sad is that my little one said that she "understands." I asked her to be honest, to tell me how she felt. I did not want her to hide disappointment in her heart without being able to talk about it. She said that she is fine because her friend explained to her the reason why, which is that they did not know how a person in a wheelchair could get into a pool. I am lucky that she is so innocent. Innocence is a bliss in this moment because she is not heartbroken as she should be. Here she is, planing her own birthday party which will happen in a few weeks and all she says is how she is going to invite the little person that she considers her "best friend" in school. The same little person who had her own pool party last week which my daughter found out about through other kids who DID go to the party because they are not in a wheelchair. I wonder how anyone can think that this is ok. I wonder why the mom did not even try to reach me to ask me. All I can do is wonder, but just for a moment because I need to move on. I don't tend to dwell on things like this because it is waste of energy. I will be heartbroken tonight and then we will move on. I pray that things like this don't ever happen again, but who am I kidding. I cannot prevent heartbreak for her All I can do is prepare her to be strong enough to keep going despite situations like this. How to do that? I am not sure yet, but I know it will come to me.
Friday, May 4, 2018
I am tired, not that kind of tired.
Monday, May 1, 2017
IEP - transition
Attachment to IEP-Letter to Paraprofessional/Aide
My name is Sophie...
Thursday, April 13, 2017
How I am curing psoriasis...
Armed with hope, I went to the dermatologist, hoping to be prescribed something that would remove psoriasis from my skin even just slightly. I was itchy all over and in pain. By now, my knee and elbows were beginning to hurt as well, which probably meant that I was developing psoriatic arthritis.
I was devastated when my dermatologist told me that I had to stop breastfeeding in order to receive any treatment at all. I made a plan to stop breastfeeding and return in five weeks.
I was not ready to stop breastfeeding and neither was my little one. I felt horrid when I had to refuse giving her milk. I felt sad, depressed, and hopeless. The dermatologist had also suggested biologics. After researching online, I found out that biologics suppress the immune system, essentially shutting down psoriasis but also shutting down the immune system completely. This meant that if I chose the biologics treatment, I would become a welcome house for any and all viruses available in the environment. I have three kids, no help from family, and I one of my kids needs my help at all times for mobility. I cannot afford to get sick. I knew that there had to be another solution to clear my skin. I looked at pictures from before and saw my beautiful skin. That became my focus in order to help myself improve my health.
I researched online forums, and libraries when I came across Dr. John Pagano's book, Healing Psoriasis. I read other people's success stories and became inspired to follow Dr. Pagano's diet exactly. That was no easy task. My weight was out of control and so were my eating habits. I was having ice cream and sweets like there was no tomorrow. I was completely addicted to sugar and sodas. Since pretty much every diet I had ever done in my life had been a failure, I did not even bother to buy the book. I researched what was on the book online and began my journey to "try" this new diet plan. Little did I know then that I had underestimated my self esteem and that what pushed me over the edge would bring my healthy body back. What was happening to me, was actually a blessing in disguise.
I began the diet the next day, and then we went to South Beach and I had a burger and a shake. There went another failure. I looked at my skin, I saw my fat self in the mirror and I was not having it anymore. I began the diet again the next morning. For the next three months since then, I have eaten the same thing for breakfast with some variations in toppings, one cup of cooked oatmeal topped with one teaspoon of honey or agave nectar. My journey to healing was about to begin.
I completely removed all white and brown bread from my diet. Food such as pasta, white rice, pastries, ice cream, and desserts were completely out of my food choices. The diet was very restrictive, even more than Atkins, or Keto. Following the plan was not easy but I was determined to feel great and have beautiful skin again so I stuck with every single recommendation regarding food choices. I did not drink the recommended teas, because of breastfeeding.
Three weeks had gone by and no results. Every day was a challenge. I cooked yummy foods for my family. I could not even have a little taste. My skin was actually getting worse. I went back online for answers and found out that it was normal for skin to flare to its worst before beginning to clear up. I was still very itchy and in pain but one day I decided to get on the scale and boy did that encourage me to keep on going. I had lost 20lbs! My clothes began to feel loose and I was feeling great in the inside. My knee an elbow pain had completely disappeared. My skin will clear up soon, I knew it would. Worse case scenario, I would lose a lot of weight and feel healthy inside. People began to comment on my appearance and how great I looked, despite of the psoriasis in my skin.
After two full months of following the healing psoriasis diet plan by Dr. John Pagano, I still had not read the actual book. One day, I saw my hands had begun to clear up. Two days later, finger by finger and all over my hands I saw completely clear skin. My skin was still pink from the scars but it was free of psoriasis. The patches on my knee and foot were now white, no longer red and looked like they were about to disappear any minute now. My elbows and arms were no longer red. Psoriasis was almost a thing of the past and I was already planning on eating my first sweet meal too test it out.
While on vacation, we went to a Brazilian, all you can eat restaurant and I finally had a delicious meal after two months of starting the diet. I was surprised that my skin was still looking great the next day. I began getting back to my old ways and making milkshakes at home. Although I was more aware of my eating habits now, I still craved sugar. My knees began to hurt again. A few days later, my skin began to itch again and I could see a glimpse of patched red skin coming back. It was time to stop and heal myself again.
This time, I have purchased the book for motivation. My skin still looks really great, compared to how it all started three months ago. This time, I am determined to change my diet for good. I am planning on cheating on my birthdays and maybe some holidays. All and all, I have lost 25lbs. Surprisingly I did not put on any weight at all. For food choices or recipes, comment below. If you suffer with psoriasis and obesity, give this diet a try and you may be surprised and amazed at the results. I will make another post with the list of foods allowed and some recipes.
Thanks for reading...
Tuesday, April 11, 2017
While you are five...
Dear daughter, you are a bright girl and I am thankful that you are in our lives. You are absolutely perfect! I will continue to teach you everything I can, so that you can become an astronomer, and veterinarian, just like you want. One day you will roll your wheelchair, or walk down the red carpet to receive your college degree at Harvard University and then I will cry tears of happiness because a world of opportunities will open up for you. We talk about it all the time. You will go to Harvard and then you have decided that you will live in England. You are just five but your already made up your mind about this and also the fact that you will have three kids named Summer, Winter, and Peter. The world is yours and I will help you become a successful woman and to raise awareness so that any parent of a child who is confined to a wheelchair will think that walking is over rated and not at all necessary to achieve success and happiness. I will continue to educate myself in order to help you become independent. I will continue to read books on physical therapy, brain plasticity, research, and scientific breakthroughs. Most importantly, I will educate myself on how to believe in our abilities to overcome adversities and seeing the possibilities in every one of life's situations. It is my job to be positive and be happy and teach you to do the same.
Dear daughter, you make us the happiest people in the world. Thank you for being perfect, thank you for being you!
Love,
Mama
Friday, March 31, 2017
Shriner's Hospital for Children in Tampa, FL
At Shriner's Children's Hospital, Tampa, we were able to do in just one day, what usually takes months in South Florida (at Joe DiMaggio's Children's Hospital) and the best part: we did not have to pay anything at all. Sophie was able to be seen by the Orthopedic and physical rehab doctor, and get the equipment necessary. The Physical rehab doctor even understands our insurance situation and worked out a plan with us to come visit every other month to have Sophie evaluated for Physical therapy and see her improvements. We have been on a hiatus from private therapy due to lack of insurance coverage, so the physical therapist at Shriner's will make a plan that we can follow at home and then revisit every other month.
I highly recommend visiting and donating to Shriner's Children's Hospital. They have been a life saver for our family.
Monday, December 26, 2016
Gifted: Born or raised?
Monday, December 5, 2016
Eight tips to raise an extraordinary child. Labels out the window!
During our latest dolphin therapy trip, we met a family from Iceland. They had traveled all the way from Iceland to Key Largo, Florida to experience the magic of Dolphin Therapy. The entire trip had been planned by their twenty-one-year-old son. He was diagnosed with quadriplegia. He is unable to speak and uses a communication device. I was talking to the mother, as much as I could communicate to her in English. I was excited to learn that her son has surpassed all educational obstacles that could be associated with being disabled. This summer, he will graduate college and receive a bachelor's degree from his local university, with honors! It was a refreshing story. Here was this boy, fully confined to a wheelchair and he was about to achieve something that many typically developing kids are not able to accomplish, graduating from college with a remarkable grade point average.
Do you think that your child can accomplish this someday too?
Resources which I am in no way affiliated with:Website:https://iahp.org/